This afternoon I finished reading Schuyler's Monster: A Father's Journey with His Wordless Daughter, a nonfiction memoir by Robert Rummel-Hudson. I could have read it more quickly than I did, but wanted to savor it.
I've been reading Rob's online writing for years and had followed the news of his upcoming book with great interest. There are a few bloggers/journalers I've followed for so long that I know more details of their lives than I do some close relatives. The Internet can be a strange phenomenon that way.
It's the story of the beautiful Miss Schuyler, Rob's and wife Julie's daughter, who has a blazing spirit, a vibrant personality, and a "monster" in her brain. The monster's name is congenital bilateral perisylvian syndrome (CBPS) which falls under the umbrella of disorders called microgyria. After some rocky times when their separate, yet equal, pain almost drove them apart, Rob and Julie became a force to be reckoned with and centered their life around finding a true home for their family, specifically a school system where she wouldn't be forgotten or marginalized.
The book basically blew me away. This is no "blogger book" -- this is a book. So, go read it, already!